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Ireland has the highest rate of Cystic Fibrosis in the world.
Cystic Fibrosis is an inherited condition that affects many body functions such as breathing, digestion, and reproduction. This lifelong condition usually becomes more severe with age and affects both males and females in equal proportions.
The Cystic Fibrosis Registry of Ireland has been in operation since 2001, but in 2008 became an independent organisation with its own Constitution and membership.
Annual Reports have been published since 2002.
The CFRI is more than a traditional register which would document the "date of birth", the "date of diagnosis" and an "outcome". Over 300 clinical details are recorded each year for each person. These are transcribed into a sophisticated software package which is encrypted and restricted to a limited number of healthcare professionals who care for PWCF.